Nobody Should Believe Me S02

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SEASON 03 | EPISODE 08

Trial of the Century

With a verdict in the case days away, host Andrea Dunlop unpacks some of what’s happened so far in the Kowalski v Johns Hopkins All Childrens trial with lawyer and trial consultant Jonathan Leach. They analyze the dueling opening statements, consider what each side is likely to look for in jurors, and which of the charges—if any—might be most viable.

Andrea shares insights on the lawyers after watching their interactions in court. She also weighs in on the extensive medical testimony so far, including a major revelation about the origins of Maya’s controversial CRPS diagnosis. We also share a chilling account of Maya’s ketamine coma that was shared in court via missives written by Beata herself.

As both sides begin their closing arguments Andrea weighs the merits of what each side has told the jury and considers what the ramifications of the imminent verdict might be.

Listen on: Apple | Spotify

Show Notes

Host Andrea Dunlop:

https://www.andreadunlop.net

For behind-the-scenes photos:
https://www.instagram.com/andreadunlop/ 

Support the show and get exclusive bonus content:
https://patreon.com/NobodyShouldBelieveMe

For information and resources:
https://www.munchausensupport.com

The American Professional Society on the Abuse of Children’s MBP Practice Guidelines can be downloaded here.

More about Dr. Marc Feldman:
https://munchausen.com

Transcript

[00:00:00] Nobody Should Believe Me is a production of Larj Media. That’s L A R J Media.

Before we begin, a quick warning that in this show we discuss child abuse and this content may be difficult for some listeners. If you or anyone you know is a victim or survivor of medical child abuse, please go to munchausensupport. com to connect with professionals who can help.

People believe their eyes.

That’s something that actually is so central to this whole issue and to people that experience this, is that we do believe the people that we love when they’re telling us something. If you questioned everything that everyone told you, you couldn’t make it through your day.

I’m Andrea Dunlop, and this is Nobody Should Believe Me.

If you’d like to support the show, You can subscribe on Patreon and Apple Podcasts, where you will get all episodes early and ad free, as well as tons of bonus content, including [00:01:00] weekly recaps of the Kowalski trial, which is happening now, with me and our Florida pediatrician friend.

If monetary support is not an option, rating and reviewing always helps, as does telling friends about the show on social media or wherever you talk to people.

To say that the Kowalski versus Johns Hopkins trial has been dominating my life for the past seven weeks is an understatement. In addition to continuing to parse through just these like thousands of pages of documents from the past six years of legal back and forth that are in the public record, I’ve been watching Almost all of the testimony, which has been airing live on Law and Crime’s YouTube channel, so big thanks to those guys for putting that out.

Um, it’s airing a couple other places as well, but if you are listening on Apple subscriptions and Patreon, you know that the Florida doctor friend that we spoke to earlier this season has Gone right down this rabbit hole with me. So thankfully, I’m not completely [00:02:00] alone here. And also, shout out to the Reddit crowd.

I’ve seen some really incredible insights from doctors, lawyers, and just people that are watching this trial. And honestly, you guys give me hope for the social media discourse. So, um, you know, for the past month and a half, I feel like my life has been really bifurcated in this weird way. Like, in the outside world, I know that people mostly kind of just have a passing notion that this trial is happening.

You know, maybe they saw the movie, they’ve seen a few headlines, but for those of us who are in the medical child abuse world, I mean, this is like O. J. Simpson level big. This trial is going to have a massive impact on our work going forward. So, what has been going on down there in that? nondescript little Florida courtroom where I’ve been spending so much of my mental time.

As this episode airs, we may be days away from a verdict in this case, and you can bet that we will update you as soon as that happens. But let’s begin with the narratives that have been laid out by the opposing sides in the case, [00:03:00] which we saw most distinctly in their opening statements. This is the lawyer’s chance to tell the jury not what the evidence is specifically, but what the evidence will show them.

So, it’s like the story of the case through their eyes. Here is the lead attorney for Jack Kowalski, Gregory Anderson, and this is from Court TV. Johns Hopkins missed a diagnosis of complex regional pain syndrome on seven different occasions. So, basically, Maya has CRPS, Johns Hopkins missed the diagnosis, and according to Anderson, they knew it and proceeded anyway, giving her the wrong treatment and kidnapping her from her family.

And these decisions cost Beata her life. We will prove that the continued allegations that she was… Crazy. And she was trying to harm her own children. So if you’ve seen the film, you get the gist of the argument that they’re making. This is a really emotional story. You know, during the opening statements, they play this 9 1 1 [00:04:00] call.

We played a little bit of it on our show. I honestly can barely listen to the whole thing. You can hear Maya’s little brother, Kyle, screaming in the background. Um, you know, and they’re playing this in court while Jack Kowalski is sitting front and center with both of his children. It’s really… You know, I mean it’s a, it’s a really emotional moment.

Now, of course, Johns Hopkins has a whole different take on what the facts are going to show. Here is Howard Hunter. Uh, he’s lead attorney for Johns Hopkins All Children’s, and this is his opening statement on Court TV. We had

no reason to wish this family harm, and we still don’t. Indeed, there’s a tragic outcome in this case in terms of Mrs.

Kowalski’s suicide, and we regret very much that that happened. The issue here, however, is who’s responsible for it. And we’re going to go over the facts of that and what the facts don’t show in terms of any connection between what was done by all children [00:05:00] and that tragic result. So whose version of events will prevail?

And what have we learned since this trial started? Today we’re going to talk about what charges are still on the table, who’s testified so far, and some of the bombshells that have come out during trial. And we brought in a guest to help give us an expert perspective on this trial. My name is Jonathan Leach.

I am a sole proprietor, trial consultant, sometimes known as a jury consultant. I am also a Texas attorney, and I have been in the trial consulting business for about 25 years, going back to the late 1990s. So Jonathan is a fellow member of the American Professional Society on the Abuse of Children’s Munchausen by Proxy Committee.

So he’s deeply knowledgeable about a variety of the issues that have come into play in this case. So a trial consultant is an expert who comes in and his bottom line role is to really help a litigant, so party in a lawsuit or a criminal matter, communicate [00:06:00] the case as effectively as possible to the jury.

So that encompasses jury research, possibly marked trials or focus groups. to help understand how the case plays to folks in a particular jurisdiction, wherever part of the country the court actually is seated in. And then working with witnesses to help them prepare for trial, help them figure out how to communicate effectively with the jury, establish rapport, get their message across, speak at a jury level.

Um, it encompasses things like visuals, demonstrative aids, graphics to communicate the case to the jury. Uh, that way. So, a lot of different tools come into play, but the gist is to help a jury understand as efficiently as possible what happened. The central cast of lawyers in this trial, so you’ve got Nick Whitney and Gregory Anderson on the Kowalski side, Howard Hunter, Ethan Shapiro, and Patricia Crowles on the Johns Hopkins [00:07:00] side.

These guys have taken on the contours of like Reality television stars for me. You know, each side has their bulldog, so that’s Anderson and Hunter respectively, and then each side has their softer touch, which is Whitney and

Shapiro. And then there is Judge Hunter Carroll, who is the Andy Cohen of this very messy Housewives franchise.

It’s been actually really interesting to see these people interacting after having read so much about them, reading all of these depositions, reading all of these motions, and you can see as they’re interacting with each other these sort of flares of animus, these bits of camaraderie. They have been at this for six years and it really shows.

And this trial, it’s grueling. Here’s Jonathan. I think what we see in the courtroom is the tip of the iceberg in terms of the amount of effort that the two trial teams are having to put in. You know, it is typical to leave the courtroom at 5, 5 30 to go immediately to the trial preparation room, sometimes called the war room.

And in [00:08:00] some sense, the work day begins. at say 6 p. m. and goes into the wee hours and it’s always, you’re always responding to curveballs, to sudden developments that took place that day in the courtroom. And then you have the six members of the jury, the people who are actually going to decide this thing, and they are sort of sitting off camera like a Greek chorus.

And being on a jury like this is no joke. I think really one of the first things I’m concerned about in this case is the Length of the trial and the complexity of the issues. Jury selection is a misnomer because when you come into the courtroom as a litigant, what you’re really doing is engaging in a process of deselecting jurors that you don’t want.

But having said that, you would want to develop a profile of jurors you think will be most amenable to your side of the case. Always keeping an eye out for those [00:09:00] who are potentially dangerous to your case. I think if you’re working with a defense in this case, what you’re looking for is a person who will take to heart the instruction to, you know, wait for the entire story.

As we know, plaintiff gets to go first. Plaintiff will do its very best during its case in chief to. put over the most aggressively pro plaintiff version of the story that it can’t. And of course, you want jurors at that point still to be willing to hear from the other side, not to be so… Emotionally inflamed that they can’t calm down and listen to the other version of the case.

If you’re the defense, again, you’re looking for markers of the ability to delay gratification. And I think in this case, that means just as examples, maybe folks with advanced degrees, people who have pursued an educational path, maybe

longer than others. [00:10:00] people who appear to be in good health, who will give answers on the questionnaires that suggest that they are capable of listening calmly and patiently to, to the entire case and sort of navigating through some of these.

I saw this medical testimony is very complex. Some of the legal issues, the orders that have come down. And as to what the plaintiff wants, according to Jonathan, more or less the opposite. In a sense, what’s happening, one version of this case is that Beata Kowalski is being put on trial. And so, as a plaintiff attorney, I’m looking for folks who will identify, I think, with Beata’s plight, who will emotionally, psychologically put themselves in her position and view the whole narrative through Beata’s eyes.

Perhaps someone who is more prone to think maybe emotionally rather than being coldly rational about things. Looking to deselect the folks that I think are favorable to the defense. So the higher level education folks, the folks [00:11:00] who have been established in the same career for a long time. The folks whose life history suggests a lot of stability, those are the people that I think I want to strike as the plaintiff attorney because I’m, I’m looking for the opposite.

So what is the jury being asked to decide on at this point? The charges have been narrowed over the six years that this lawsuit has dragged on as the judge has issued what are called directed verdicts. Here are the current charges as they stand from the 8th amendment to the original complaint. There is a count of false imprisonment, though this has been narrowed considerably to the days between the admission to Johns Hopkins and the DCF order coming down, as it’s been determined already that this original call was made in good faith.

Battery is still in, but also considerably narrowed. Now it is only regarding the incident involving the photographs that were taken of Maya before her court appearance. There is medical malpractice. For this, they have to prove that Johns Hopkins violated the [00:12:00] standard of care while Maya was with them.

There is negligent hiring and supervision and training of Kathy Beatty and a separate charge for all of the doctors at Johns Hopkins. There’s a charge of fraudulent concealment. This has to do with a video allegedly taken while Maya was in the EEG room. This is a room where they do certain types of testing and the plaintiff claims this video contains exculpatory evidence that was allegedly kept from them.

Allegedly. There is one count remaining for the insurance fraud. This is honestly the most confusing to me because parts of it have been taken out. Parts of it remain big question mark about this one. And there’s a count for Negligent Infliction of Emotional Distress and a separate count for Intentional Infliction of Emotional Distress.

So these have both been somewhat narrowed and these are the counts related to Beata’s death and its effects on the family and Maya’s PTSD from her time in the hospital. This list has been cut down from the original [00:13:00] 20 counts. That list included things like false reporting, civil conspiracy, malicious prosecution, and wrongful death.

So you can see why this has taken six years. And what about those false imprisonment claims? This has been central to the Kowalski narrative about Johns Hopkins All Children’s, who claim that they kept Maya there to punish Beata and to be able to bill their insurance for a condition that they didn’t believe she had.

But what we now know is that in fact, Johns Hopkins was not trying to keep her there. And, uh, a neutral shelter hearing, which is in October of 2016, uh, what I show here is that the guardian ad litem actually says, you know, we’re, we’re in a tough spot here. I think he says all of us agree that she needs to be transferred to the appropriate place.

We just don’t know where that is. We’re having a hard time figuring out where that could be. So yeah, what comes through is this kind of desperation on, on all parties. Let’s [00:14:00] figure out what the best plan is and let’s do that. Now, with respect to the specific plan to transport her to Neimors, my understanding is, I think I saw testimony on this, that there was, at least from the hospital’s viewpoint, a meeting of the minds, right?

We all agree this is what should happen. And then the very next day, um, the hospital discovers that no, the Kowalskis aren’t part of that plan after all. We thought we had a plan yesterday and then today it’s no, we’re not, we’re not taking her there. So this is about an attempt to transfer Maya to Nemours, a hospital with a pediatric pain clinic that they felt could better care for her regardless of whether her pain was due to CRPS or conversion disorder.

However, Beata wasn’t interested in transferring Maya after she found out that they wouldn’t perform a specific procedure she was looking for. Here is Dr. Santana Rojas, the Director of Pediatric Pain Management from Nemours, and

she’s explaining, this is from the Law and Crime Network’s coverage of the case.

I just remembered that she mentioned several [00:15:00] times that her daughter suffered from complex uterine pain syndrome and that she wanted her to have an emphatical pump placement and my response to her was that, um, I don’t provide that treatment. For that condition, but I’ll be happy to see her in the outpatient setting in the clinic to make an evaluation and recommendations, which for complex trigger pain syndrome, we have a standard program.

In our clinic, where we keep the patients for an average of a month, Monday to Friday, doing physical therapy, occupational therapy, and behavioral therapy every day. There were several other attempts to transfer her throughout her stay, but once the DCF case was underway, none were successful. There’s also a big question [00:16:00] about timing, and Beata and Jack’s attempts to leave the hospital before the shelter order.

Jack claims that during this period, they threatened to call the police if they tried to leave with Maya against medical advice. So I asked our doctor friend about this and she said there are some situations where a hospital might have to call the police in a situation where it’s physically dangerous, for example, for parents to remove a child from the hospital.

It’s not clear exactly what happened here, which is I think why this count remains, but only for, again, that short time period. So which of these charges might be the most viable? Here’s Jonathan. I think if I’m the plaintiff’s attorney, I’m feeling maybe more confident about the Negligence claim. That is the negligent infliction of emotional distress claim.

Then maybe the malpractice claim. Just because I think when the jury sits down with the verdict form, they will not have a difficult path to [00:17:00] navigate there from things that the hospital woulda, coulda, shoulda done in order to prevent all this. I think what we’re seeing so far at least is a little bit of fuzziness about what exactly is the protocol.

What is the standard operating procedure? You and I can explain maybe why the 85 days elapsed or the 87 days elapsed, but, you know, it proves to me that the hospital was assertively, aggressively trying to find a, uh, a plan B for this little girl. I’m thinking that. N I E D claim. It looks pretty promising maybe for the plaintiff.

What do we know about this jury and how they’re taking all of this in? You know, we can’t see them for obvious reasons, but we do hear from them in the form of questions that they are permitted to ask each witness. because of the questions they’re asking. This seems to me to be a very engaged, thoughtful, serious jury.

For example, can we see the shelter order? Can we see a [00:18:00] copy of the shelter order? That is, this is a jury that wants to know what were the rules of the game? What’s the governing standard? What’s the protocol here? So my prediction is that with this particular jury, they’re going to do their best to give both sides a fair shake and really work diligently To arrive at the right decision.

I agree with this take, in the beginning at least. So, we did record this interview earlier in the trial. As it’s worn on, I’ve become increasingly concerned that at least a few of the jurors are not really getting it. You know, I’ve heard a lot of questions to the tune of, Oh, is such and such person an expert in CRPS?

Which really plays into the idea that you would have to be to identify this abuse. Anyway.

Unsurprisingly, the vast majority of people who’ve taken the stand in this trial have been medical professionals of some kind, and there is just so much information coming at this jury, I do not envy them. There is always [00:19:00] a danger that they get overwhelmed. I think the lesson really is a lesson to the trial team, whether it’s plaintiff or attorney.

I think everybody on both trial teams has to recognize, look, this is a lot of work we’re asking each jurist to do. How can we make this process, the next whatever it is, six weeks, make it as easy as possible for them? Dr. Chopra, interestingly, has demonstrated that he understands that very well. He faces the jury, he addresses them directly, he makes jokes, he’s sort of light hearted about the amount of, the number of medical records he’s looked through, he’s connected very well with them.

As we’ve discussed, Dr. Chopra was on the stand for an entire day and I don’t really honestly know how the jury was able to track everything he said. Importantly, he only saw Maya one time, so mostly he was there talking about CRPS in general. In the film, Dr. Chopra was positioned as this neutral expert who came in and gave this diagnosis.

[00:20:00] Now, he was hired by the Kowalskis, and my suspicion is that he was selected by Beata because of his beliefs about, quote, misdiagnosis of

Munchausen by proxy in parents of CRPS patients and his apparent stance that medical child abuse basically doesn’t exist. And as we’ve discussed before with experts like Dr.

Carol Jenny, just because you can find a doctor or two to reinforce a belief doesn’t mean that it’s a legitimate diagnosis. I think what we know is that there are, there are MDs out there who are of that and who are, I won’t say, will issue a made to order opinion, but are very, you know, amenable to moms, typically moms, who make this sort of complaint of some exotic illness.

And this seems to be really central to the plaintiff’s strategy, to insist that CRPS is not only this exotic thing that, for some reason, only Dr. Chopra and Dr. Kirkpatrick, [00:21:00] both of whom reject the medical consensus around CRPS and ketamine treatments, are qualified to diagnose. And furthermore, that Maya had the most unusual exotic case of it that was somehow both extremely severe and yet so subtle that all of these other doctors misdiagnosed her.

Every medical argument from the defense seems to be answered with either the pain just comes and goes or that the person asking just doesn’t understand CRPS. And as a reminder, Dr. Kirkpatrick is a, quote, expert in CRPS because he says he is. There’s no board certified subspecialty in the disease and the subspecialties you would look for, such as neurology, pain management, and anesthesia, he also doesn’t have any of those or any board certification at all.

As we discussed in the last episode, one of the biggest bombshells regarding this CRPS diagnosis came out in the last two weeks, and that is that the diagnosis [00:22:00] Pre dated Dr. Kirkpatrick, who was the first person to officially diagnose it. Beata reported to another doctor a week before ever seeing Dr.

Kirkpatrick. She reported to this pulmonologist, Dr. Kreisman, that Maya had a diagnosis of CRPS. So, what I gleaned from that is that she had had this conversation. with her patient’s daughter about CRPS. We already know about that. It was in the psyche valve of Beata. They talked to this person who had first told her about CRPS and told her about Dr.

Kirkpatrick. That she talked to that person, that she decided that was Maya’s diagnosis because she was reporting it to other doctors before she ever had any diagnosis of CRPS. So, which of these dueling doctors should we believe, given that they’ve at this point been divided into sides? And this has been a problem all the way through this [00:23:00] case.

What they really needed was an expert who could break the tie. And that was almost impossible once Munchausen by proxy was in the mix. Here’s Jonathan. I think in this case the specific wheel that was turning very slowly was the search for an independent expert. Where is the independent expert who can come in here and weigh in on this case and evaluate for the benefit of the court what’s really going on with this child.

I think in the shelter hearing what comes through is almost the the desperation of the judge. You for somebody to come rescue them, someone with independent expertise to come in and evaluate the case. And no one can find one. They’re hard to find. These people are very specialized. They’re few and far between.

They’re rare experts. And in this case, in October, late 2016, [00:24:00] And what area of expertise, like when you say an expert, because I think then a lot of people are like, well, an expert in CRPS or an expert in like, what, what are you looking for expertise in specifically? During the shelter hearing, the very initial shelter hearing, the two possibilities that were raised were someone with, Expertise in Pediatric Psychiatry.

Someone with expertise in Pediatric Neurology. So those would be just two examples. Now, as soon as someone with those qualifications understands what they’re being asked to do, many of them run the other way. That is, this is a lot, this is a potential lawsuit. This is a disputed matter. This has all the indications of going into the legal system.

I’m going to have to review thousands of pages of medical records. I want no part of this. Now, I don’t know to what extent that attributes to the 85 or 87 day stay in the hospital, but I think, based on what I’ve read, it is a very significant [00:25:00] reason for that long time period. The plaintiffs have finished up at this point, so we’ve heard their arguments other than what is going to come up in cross examination, and it has been rocky.

There have been several calls from both sides for a mistrial. So, what happens if a mistrial is called? We start all over. I mean, both sides have to retool and ramp up. I’ve been involved in those and essentially what happens is this, whatever, however many weeks we’ve been doing this, becomes a kind of very elaborate mock trial for the real one that comes later.

It’s hard to imagine, but it all would cure up at some future date. Oof. Okay, so to recap, there are a total of five doctors who’ve testified on Maya’s behalf. You have Dr. Kirkpatrick, Dr. Chopra, Dr. Cantu, who is the doctor who provided the ketamine coma treatment in Mexico, as well as Dr. Wassner, her pediatrician, and Dr.

Spiegel, who is a [00:26:00] neurologist who prescribed Maya these hyperbaric oxygen tank treatments that she was receiving at the same time that she was getting the high dose ketamine infusions. And of course, there is Dr. Hanna, who is the doctor who provided the ketamine. Given that he saw Maya, 55 times in the year leading up to her Johns Hopkins stay and was the doctor who referred her to Johns Hopkins for her stomach pain, his absence at this trial has been notable.

However, he did give a deposition which the defense played in court, i. e. Johns Hopkins played this in court. And honestly, as soon as they did, I could see why maybe the plaintiff didn’t call him. His deposition was a little all over the place, but he did say that he had maxed out the dosage he was willing to give Maya.

And just as a reminder, this dosage is, as we’ve heard from various doctors throughout the trial, 25 to 50 times higher than any ketamine dosage they’ve ever [00:27:00] seen. And Dr. Hanna also said that was his ceiling and he couldn’t do any more for this child at that time. Two of the doctors who have done a full medical record review for this case and have testified for the defense also said that Dr.

Hanna’s monitoring at his clinic was substandard to say the least. Now, of the more than three dozen doctors who evaluated Maya during this time period, several other doctors with expertise in CRPS and pediatric pain did not think that her systems were at all consistent with CRPS. The first one we heard from was a doctor, Gadi Ruvivo, who works with a pain clinic that works closely with Lurie Children’s where Maya spent some time.

So this is a piece of his testimony from Law and Crime Network’s coverage. Let’s go back with your note here. Um, you know, it says, uh, you see where it says today Maya is in pain. Do you see that? Yes. Okay, and [00:28:00] then, um, it says quote she describes the pain as constant and involving her entire body including legs, back, head, and arms.

Do you see that? I do. Is that the type of pain presentation that you would typically associate with the patient with Pediatric Complex Regional Pain Syndrome? No. And why is that? The very nature of the definition. It’s complex, but it’s regional. So typically we’ll see patients who present with a limb, so maybe a foot or a leg.

I have seen patients that may present with a kind of hemiparesis presentation. So they’ll present with a limb and the trunk. Um, but this is, this is a different diagnosis based on what we’re saying here. Based on my experience. The second person we heard from was Dr. Elliot, who is the anesthesiologist from Johns Hopkins.

He testified on October 23rd. Uh, there would be times [00:29:00] where I would see Maya with anklets on her, on her ankles. Uh, but if someone would attempt to touch her leg lightly, then she would complain of pain. Just very much inconsistent with, with, um, the diagnosis of CRPS. So does Maya have CRPS or not? We will never know for sure, but given what we do know, I think most likely she does not.

Of all of the medical professionals who may or may not have been qualified to diagnose CRPS, Beata, smart as she was, was not one of them. And this diagnosis appears to have originated with her. It’s worth mentioning that the defense team is not moving on the assumption that she didn’t have CRPS, partly because the treatment for CRPS and conversion disorder, which is what they believe she did have, is the same.

Here’s Dr. Elliott explaining this, and this clip is from Law and Crime Network. Well, as I should share, the standard of care for pediatric [00:30:00] CRPS is, is really functional restoration, uh, meaning that you engage the patient, uh, in the endeavors of physical therapy, occupational therapy, and, and cognitive behavioral therapy.

The medicines are really used to facilitate those things, not, um, for anything else. You know, I really sense how careful the majority of the doctors on the defense side are. They’re really avoiding inflammatory language, they seem to be taking pains not to speak ill of Beata or Maya. There was one doctor, however, who did not dance around his conclusion.

We heard a piece of his affidavit in our episode about Beata’s death. So this is Dr. Elliot Crane from Stanford, and this clip is from the Law and Crime Network’s coverage. Where do you presently practice your profession? Actually, I retired on May 1st, but prior to that Stanford University at the, uh, in the School of Madison.

Okay. Um, and you retired, when was it? May 1st. May the first. Okay. [00:31:00] And, uh, tell us if you would please, sir, where you received your background, where your education and training to become a physician. Uh, I went to medical school at the University of Arizona in Tucson, Arizona,

graduating in 1977. And from there I did, uh, pediatric residency at the Massachusetts General Hospital in Boston.

Following that, an anesthesiology residency at the same hospital, and then a fellowship in pediatric anesthesia and critical care medicine at Boston Children’s Hospital. And that was all finishing, um, at the end of 1983. Are those programs at Massachusetts General and Boston Children’s affiliated are. So, there was so much to Dr.

Crane’s testimony, but just to kind of share some of the highlights, what I found most interesting about his testimony, you know, he talked about the fact that there are actually uses for ketamine that are legitimate with childhood [00:32:00] CRPS in cases where a child has refractory pain. So that’s pain that has been resistant to any other kinds of treatments.

However, he did say that if you’re doing something like a ketamine infusion. Number one, he uses a very low dose, so 1 25th of what Dr. Hanna was ultimately using on Maya, and that this kind of treatment should be done only in a hospital setting where there’s proper monitoring. He also described ketamine withdrawals.

And as he was talking through this part, this was really fascinating because the plaintiff has talked about ketamine as though it’s kind of no big deal. Like that this was a perfectly, you know, safe medication that there was no side effects from. And hearing him talk about ketamine withdrawals and then looking at some of Maya’s behaviors when she arrived at the hospital where she was demanding anesthesia and really acting out like she was swearing at people, she was yelling.

It really sounded similar to what he was describing when he talked about ketamine withdrawals, and that description [00:33:00] really got me. He also offered his expert opinion in why Maya does not have CRPS and talked about some of her alleged symptoms, some of which were shown in photos by the plaintiff’s side of, quote, lesions, which he agreed with Dr.

Revivo that the lesion they showed was a scratch. and Maya’s alleged dystonia. Now the dystonia is something that has come up a lot, came up in the film, it came up in the court case. And he explained that dystonia basically, and this was one of my questions throughout this, dystonia does not come and go like during the course of a day.

So if Maya had dystonia in her feet, they would be frozen in that position for a period of time. They wouldn’t be dystonic and then in the anatomically correct position on and off throughout the day, which is what? All of these providers have observed about her. He also looked at this photo of Maya when she was in a coma in Mexico that was taken by Beata [00:34:00] with her feet turned in.

This was used as evidence that she was not faking the systonia, that she really had her feet frozen in this position. But Dr. Crane explained that when children are under anesthesia, their feet either splay out or turn in, and hers turned in. So that’s just what kids feet look like when they’re under anesthesia.

They also asked him the question of whether he had found with his patients, and again, you know, he ran this pain clinic that was the only one of its kind on the west coast, so he really was a destination for parents whose children had CRPS. He said they would come from all over the world to see him. And they asked him if he had seen the same pattern that Dr.

Hanna, Dr. Kirkpatrick, and Dr. Chopra had reported, that they had all said that they are always seeing their parents of CRPS children being. falsely accused of Munchausen by proxy. They asked him about this and he said absolutely not, no connection. So, to my mind, that tells us something about the clientele for those other doctors, not about [00:35:00] CRPS parents.

And Dr. Crane really painted a very different picture of the prognosis for childhood CRPS than the experts who had testified for the plaintiff. In particular, Dr. Chopra, who really painted this picture of, you know, this being a lifelong condition where Maya was always going to be in horrific pain and obviously part of the thing that they’re asking for in this damages question is money for ketamine to treat Maya’s condition, money for the full time care that she might eventually need.

So here is what Dr. Crane said about the prognosis for childhood CRPS in his experience. This is from Law and Crime Network’s coverage. Maya, I think was about 10 years old at the time and. I would say that 10 year old girls, and I say girls because it’s about 7 or 8 times more common in females than in males.

Almost all of our patients are females who have CRPS. We don’t know why that is. [00:36:00] 10 year old girls with CRPS are our favorite population to take care of with CRPS. Why? Because they’re the easiest to take care of, they recover the fastest, and they don’t recur. Of all the kids we’ve taken care of, we’ve never had a recurrence of CRPS in a child whom we’ve treated at the age of 10.

As kids get older, it becomes more difficult to treat, more challenging, and as children advance through adolescence, their teen years into their young adult years, it begins more and more to, uh, take on the pattern of adult CRPS, which is a much more difficult condition to treat. All in all, we’ve heard from about a dozen medical professionals who’ve testified on behalf of the defense so far.

And considering that these people are from numerous different institutions, they paint a remarkably consistent picture of Maya. They’ve said that she was distractible from her pain, i. e. that she would be screaming in pain one moment, But that she could answer [00:37:00] questions if you asked her. They said that she showed much more functionality than she reported.

So if you’d ask her, for instance, if she could move her hands, she would say no. But then if you would observe her while she wasn’t being asked, they would see her moving her hands and they reported that she had no physiological signs of pain. The other consistent thing that we’ve heard from this provider is that Beata’s presence had a negative effect on both Maya’s perception of her pain and her behavior.

So what do you do when you have. All of these doctors who are disagreeing with each other and they have had varying levels of communication with one another. Mostly they’ve had no communication with each other. So what do you do if there’s a suspicion of abuse in this case? Ideally, you would bring in an experienced child abuse pediatrician to look at the whole picture, which is exactly what happened.

And on October 26th, we finally heard from the woman who’s been blamed by the Kowalski team for just about everything. This is a clip from the Netflix film Take Care of Maya. This young girl, Maya, represents hope [00:38:00] for all of us in bringing Sally Smith down, bringing the system down. Dr. Sally Smith arrived in the courtroom and when she took the stand, she went about pulling these enormous binders out of her bag and stacking them next to her mic.

Unlike Dr. Kirkpatrick, who famously left his notes in the hotel room, it would appear that Sally Smith did not. So, she looked a bit shaken up to begin with, and this is unsurprising since I’ve heard numerous reports of protesters being outside, one of whom apparently confronted her right before she came in.

Listening to Dr. Sally Smith describe what she does in her role as the head of the CPT, so that’s Child Protection Team, was really fascinating and It really drove home for me what a difficult job this is. You know, she is looking day

after day at the worst part of humanity. She’s looking at people who’ve done horrible things [00:39:00] potentially to their children.

And, you know, also I think the thing that never comes up is that she’s looked at over 3, 000 cases in her career by her estimation and Many of those were probably not abuse, and she helped those parents not have to go through a DCF investigation. And that’s just something that never gets talked about because those parents might not even have known that she was looking at their records.

So… Anyway, it was very satisfying to watch her shut down, one by one, these claims that have been made about her in this case. So, this is Jack describing his interaction with her in the Netflix film. She never stated who she was. She just walked in, looked at me, looked at Maya. She came in and she acted like a regular doctor that worked for the hospital.

And she started to ask questions. If they would have known who she was, we would have never spoken to her. Here is Dr. Smith [00:40:00] describing the meeting that actually took place. And this is from Law and Crime Network’s coverage. Did you ever interview Mr. or Mrs. DeWolfe? I took, uh, um, as part of my medical evaluation, I took a fairly extensive history.

For Mrs. Kowalski and a much more abbreviated history, um, for Mr. Kowalski. Um, the meeting with Mrs. Kowalski took place on October 11th, 2016, and the, um, relatively brief interview or history taking with, um, Mr. Kowalski occurred on October 13th. Did you ever speak to the two of them together? I did not. When you spoke with Mrs.

Kowalski. Uh, where, first of all, where was it? So at that time, Maya was still in the pediatric ICU. They have a, like a family conference room kind of thing outside of the main entrance to the pediatric ICU and, um, because of the investigation that was, um, [00:41:00] being initiated and everything. I scheduled a time, uh, where the Child Protective Investigators and the people in law enforcement that were, um, investigating the case could join me to, uh, while I took my medical history.

So, um, there, as I recall, there were about five of those people, two or three Child Protective Investigators. I think two law enforcement people and Mrs. Kowalski. They were all in that room already when I got there for the scheduled meeting, which I believe began at 5 45 in the evening on the 11th. Um, did you identify yourself to Mrs.

Kowalski? Absolutely. What, how did you identify yourself? I always say I’m Dr. Sally Smith. I’m a pediatrician with the child protection team. So interestingly, the meeting with Jack appears to have happened after she took the [00:42:00] history from Beata, which we know that Beata told Jack about because there was an email to that effect.

So it doesn’t really seem plausible to me that Jack didn’t know who she was, but… You know, under those circumstances, he’s stressed out. I could see why he might mistake her for a doctor that worked for the hospital. He wouldn’t have necessarily known what she looked like. But at the same time, I’ve never been clear on what Jack thinks would have been different if he hadn’t talked to Dr.

Sally Smith. Anyway. There was a lot of back and forth about whether Dr. Sally Smith was in any way a treating physician, and she said that she did have ongoing conversations with the doctors but did not do anything like making orders or seeing Meyer in rounds or anything like that. So listen, my overall takeaway on this point is that maybe there is some murkiness around CPT, DCF, Department of Health, and the doctors in this case, but that is a systems problem.

not a Dr. Sally Smith problem. So she also shut [00:43:00] down that HIPAA claim and she cited a specific exception to it. Doctors who are performing her role can look at records if someone has a concern about abuse, which is what happened in this case. Some of the most compelling moments happened during Gregory Anderson, that is again the lead attorney for the Kowalskis, cross on the proffer.

So the proffer I am not a lawyer, but in my understanding, this is a place where they are collecting evidence that the jury does not see, but that may be used in the appeals process or is being collected for the record. So the jury was not in the room when some of these things were being said, sadly. So, right away, they addressed one of the biggest criticisms about Dr.

Smith, that she did not take Dr. Kirkpatrick seriously enough. Here Gregory Anderson asks Dr. Sally Smith about this. This audio is from the Law and Crime Network. Yeah. Except for the fact that you did not tell anyone in that report that he had warned you off [00:44:00] Kowalskis. That’s, it’s completely irrelevant for a child protection team medical evaluation because That’s the whole point of the, of the evaluation and gathering all the records.

The problem in these cases is that the treating physicians have not done that. And so the fact that he, who sent her to Mexico for the ketamine coma, told me

not to investigate child abuse, it was completely irrelevant to me because the, my job was to investigate child abuse. So if I had come away from my job saying, I was supposed to do this, but this doctor told me not to, so I’m not doing it.

And there’s no evidence of anything here. I would not have been doing my job even remotely near a standard of care. Do you now understand the importance of putting both sides of the story in your report? The both sides of the story is the [00:45:00] responsibility of… The various people who are going to present it to the court.

My job as the medical director for the child protection team is to do what I need to do to assist the investigators and the, um, detectives and the attorneys that are involved in the case as to whether there is evidence to support a diagnosis of whatever type of child abuse is being assessed. So. It’s not my responsibility to lay out some whole long argument about what it might be otherwise if I had extensive evidence to support that it’s a type of child abuse.

She also finally addressed something that has been driving me nuts, and this is the conflagration between factitious disorder imposed on another and medical child abuse. Medical child abuse is a child abuse pediatric diagnosis. There is a parallel track in psychiatry where there’s a thing called factitious disorder [00:46:00] imposed on another, which is assessing the perpetrator or the caretaker in that scenario.

But I don’t need a psychiatric degree to assess medical child abuse. I’m very well trained to evaluate medical child abuse based on my child abuse pediatrics experience. Interestingly, Anderson also lied to her during this back and forth. He said that there were no other doctors who testified and said that Maya didn’t have CRPS.

And that was wild to hear him say because we have just watched a number of extremely qualified doctors. Do exactly that. So, Dr. Sally Smith was very clear on two points. That she was the person in the situation most qualified to diagnose medical child abuse and that there was very clear evidence of it in this case.

And she addressed these other providers who’ve been brought by the plaintiff. The folks who supported the CRPS diagnosis. [00:47:00] Dr. Hannah, a anesthesiologist with over 25 years of experience. In treating CRPS, you didn’t put his confirmation, or excuse me, he did a diagnosis of CRPS in your report either, did you?

I believe in the history, I made reference to that. I, yeah, I’m pretty sure I did say that, that he, um, you know, made that diagnosis. But this is a doctor who was giving a child, a 10 year old child who’s on the small side, a thousand milligrams of ketamine, anywhere between 8 and 32 milligrams of Burset, doses of Zofran, dose 1750 milligrams typically of magnesium.

All at the same time, in an outpatient setting, with no documentation of medical, of vital signs. And, there was indication in the records that appeared to me to suggest that the [00:48:00] family member was the person monitoring the pulse oximeter. So, that person, to me, is not particularly reliable in terms of whether this child needed the treatment that she was getting, whether he made an accurate diagnosis or not.

So, I put his information in my report, yes, I discounted his diagnosis. And of course you discounted Dr. Cantu’s confirmation of CRPS. Well, I never got any records from Dr. Cantu, so I couldn’t really address that whole, um, situation other than from the WordPress blog. This person put a nine year old child in a ketamine coma for days.

It took her probably about a week to just be able to be discharged from the hospital after that. I, I didn’t find him reliable from what I saw. And then there was this memorable [00:49:00] exchange. Well, isn’t it true, ma’am, that you are not a medical investigator. You are, in fact, a medical prosecutor. That’s absolute nonsense.

To be frank, as we’ve talked about in the last episode, the story the plaintiff is telling is difficult to make sense of. In their version, Maya was a promising girl on track to take over the world before Johns Hopkins All Children’s ripped her from her parents, denied her her necessary treatment for her condition, i.

e. the high dose ketamine infusions, and this cost her mother her life because they had falsely accused Beata of medical child abuse. None of the records, including those from the doctors who testified for the plaintiffs, bear this out. No one who treated Maya in the lead up to this hospitalization said she was getting any better, only worse.

Is demonstrated by the Glossy [00:50:00] People Magazine and New York Magazine spreads and the Netflix film for what this version lacks in factual basis, it makes up for an emotional punch and it appears that the plaintiff’s strategy is just that all heartstrings. No skepticism. Because of this, we’ve seen a lot of videos and photos of the family, but.

They might not turn out to have the effect the plaintiffs had hoped. Here’s Jonathan Leach talking about that. The visuals that I have seen, I’m not sure are that helpful to the plaintiff. That is, my sort of windshield take on a lot of these photos, video. Even seeing this young lady in the courtroom, I, I think as a juror, I’m, I’m, maybe I’m a little puzzled by how serious was this, how ill was she, and I’m thinking, for example, maybe of photos or videos that took place in Dr.

Kirkpatrick’s office, where she seems to be almost [00:51:00] bubbly and engaging with him in a very controversial situation. light and seemingly happy way at a time when I think we’re told that she is in terrible. So the fact that the jury has been exposed to things like that makes me maybe a little, if I’m the plaintiff, maybe a little concerned about what the takeaway is from all that.

Yeah, the visuals of Maya and I, I watched the bulk of that video that’s on Director Kirkpatrick’s website, which is, that’s one of the things he does is his research is videotapes these sessions with clients. And yeah, it’s hard to sort of conceive of how that’s a child in excruciating pain. And indeed, even the footage of her from Johns Hopkins that they included in the Netflix film, she looks bored.

I mean, she doesn’t look like she’s in excruciating pain. And of course that lines up with all of the reports from the doctors during that admission and several others before it. Right. And I think it’s, you know, it’s really interesting to think about the visual of Maya herself sitting in the courtroom because I [00:52:00] think on the one hand, you know, she’s this beautiful, sad, young girl.

I think that has its sort of cultural power all its own. But then, she’s looked a bit unwell to me the last few days and I worry very much about the toll that this is taking on her and her brother. But, um, uh, I mean, in general, she looks healthy, and she’s clearly walking around, and I think that the plaintiff is trying to make this case that, you know, specifically in terms of the medical malpractice claim, that the treatment that she received during her stay at Johns Hopkins actually set her back, when in fact, she was never given ketamine again, you know, after a little bit that they gave her in the, in the PICU, and then she’s never received ketamine treatment since.

And the overall trajectory of her health has been, has improved a hundredfold since, since that, that time before the hospital where she was confined to a wheelchair out of school, you know, going to these ketamine [00:53:00] treatments every week, getting all this hyperbaric oxygen things and just really like in doctor’s appointments all the time.

Right. I want to touch on another example of a visual that I think would be very helpful on a, on a horizontal timeline. You know, if one entry is her treatment at Tampa General, which is basically the month of July and August. in 2015. As I understand it, Andrew, she is prescribed physical therapy and psychological counseling coming out of Tampa General.

Um, as far as I can tell, the really next significant event after that visit to Tampa General that month there of therapy is that Beata takes her to Dr. Kirkpatrick for what begins this ketamine infusion treatment. I mean, it just, in terms of a visual, that just seems to be a significant turn that would be important for the jury to know about.

It’s hard to remember sometimes that it’s actually the [00:54:00] hospital that’s on trial rather than Beata Kowalski. Because of course, whether or not she’d been committing medical child abuse colors absolutely everything about this case. A few days into the defense, the judge issued an order that really restricted how much the defense could talk about Munchausen by proxy and medical child abuse going forward, though, of course, the plaintiff had had witness after witness on the stand talking about, quote, false allegations, despite that count being dismissed already, and they made the argument over and over again that this wasn’t Munchausen by proxy, this was CRPS, as though those two things are mutually exclusive.

And of course, the There’s also the fact that they don’t seem to believe that Munchausen by proxy is even real. So we had talked about this Doe Bear motion earlier on, and here is Jonathan breaking that down with us. In essence, it says that the specialized knowledge that the expert has is admissible if it is based on [00:55:00] reliable principles and methods that are generally accepted in, in the community of experts, typically the scientific community, and that it’s based upon facts and data and that in the judge’s opinion, the expert has reasonably rationally applied the principles and methods to the facts and the data.

And what the plaintiffs in this case are, are asserting is that because these terms, Munchausen’s and falsification, medical child abuse. are so fuzzy, in their opinion, and a science, um, they characterized it in their motion as junk science, that Judge Carroll should not allow any of this testimony yet.

It’s really hard not to feel Beata’s presence looming in this courtroom. It’s the central question that most people are duking it out about online. You know, was she a [00:56:00] martyr? Or a monster. Technically, of course, it doesn’t matter for these specific counts. But also, it deeply does. Depending on which side of

the dichotomy you fall, you either think Johns Hopkins was being rightfully protective of Maya or senselessly cruel to Beata.

And this also colors The view of Beata’s death. Was she an innocent mom who believed that ending her own life might save her daughter? Or was she an abuser who feared that her lies were about to be exposed? We’ve heard snippets of her throughout the trial, from doctor’s notes, from recordings, and from the notes she left behind upon her death.

But this week, we got a much more intimate and disturbing look into Beata’s mind via a number of emails that she had written to herself. These were drafts, they believe, of the blog that she maintained that was written in Maya’s voice. These letters chronicle the ketamine coma that Maya underwent in November of 2015, which the plaintiff has taken great pains to paint as not so terribly serious [00:57:00] of a procedure.

So we are going to have my producer Tina read us a bit from these letters. This is from the first batch. Unfortunately, things got complicated on Tuesday, 11 17 15. My blood work came back bad. Potassium, magnesium, protein levels, and HGB were low. And the worst of all, my cortisol level was zero. I was back in adrenal insufficiency.

That was really the worst possible news I could receive this morning. Due to high risk for complications from adrenal insufficiency, including death, My ketamine coma got postponed for another day. I had to be re evaluated by Pete’s ICU doctor, who then consulted Pete’s endocrinology for more brain knowledge.

This disease is very rare, and especially more rare in children, so there are still many unknown phenomena. The doctors are still learning more about RSD each day from each RSD case they get. My case will help other RSD patients in the [00:58:00] future, and the hope is that maybe one day the FDA will approve ketamine coma in the U.

S. It is really sad for an American citizen to go out of the country, in Mexico, to receive this type of treatment. So far, I am the youngest child in history who has developed severe generalized RSD in a very short period of time, and I am the first youngest child in history who is going to be placed in high dose ketamine coma.

It’s my last and only chance for better quality of life. Getting rid of pain, dystonia, alodinia, and maybe a chance for being able to stand or walk one day

again. This procedure is very high risk in my complex case due to the fact that I have immunodeficiency and very poor nutritious status and now very severe adrenal insufficiency.

I was told today I am high risk patient for developing infection sepsis during the coma, difficulty weaning off the ventilator after [00:59:00] coma, needing blood transfusions and a total body failure, death as a result of adrenal insufficiency and other complications. Despite the risks and complications, there are several good things going for me right now.

My young age, very early RSD CRPS diagnosis, hundreds of angels watching over me, and God working through the doctor’s hands and brains to get me a remission. I am hoping for a miracle ketamine coma! Exclamation point, smiley face. So this is the procedure that the plaintiff has painted as being of no real risk to Maya.

And this business about the child being the youngest, most rare, most unique pediatric case of something to have ever existed, this is a huge red flag. There are so many parallels in this to the Mary Welch case, which was the case, if you’ll remember, that we discussed in season one. So in this, her son had allegedly this extremely rare condition.

In his case, it [01:00:00] was something called normal pressure hydrocephalus, which is a condition where fluid builds up on the brain. And Mary also talked to friends about how the medical community was quote, learning so much from his case. She also insisted that he needed the most invasive treatment, a brain shunt in his case, despite the fact that many doctors told her that he did not need it.

And the only doctors that Mary trusted. were the ones who gave her what she wanted. So I have been watching the online conversations about this case, and there was a huge shift once these letters became public. Many people were horrified by these. Obviously the procedure itself and just the number of heavy duty medications Maya was on is harrowing to read about.

Then there’s the fact that she is writing this blog in Maya’s voice, which seemed pretty off to a lot of people. And I don’t know how else to describe the tone of these letters other than [01:01:00] cheerful. So here is my producer Tina reading from another one of these letters. Last night was really rough for me.

My temp went up again. I became more tachycardic and restless. The sputum gram stain came positive, so they’re going to continue IV antibiotics. Despite continuous high doses of ketamine, versed, and precedence IV, plus extra doses

of ketamine slash versed slash propofol, I was still waking up at night every 20 to 30 minutes.

I was very restless all night and managed to tongue out about three inches of OGT. Ketamine gives me magical powers and I acted like I was a super girl. Today is coma day three, yay! I feel better today after Dr. Cantu increased my ketamine infusion to 5 milligrams per kilogram per hour. He also increased my Versed drip to 4 milliliters per hour, Presidix to 3.

8 milliliters per hour. He was also kind enough to increase [01:02:00] the ketamine extra boluses to every one hour, on top of bursed boluses and propofol boluses. I have very high tolerance for drugs. If I was a horse, I would be comatose or dead already. But things are totally different when it comes to a girl with RSD.

My metabolism is super fast. My mommy says I’m not a cheap date and my daddy’s response was that he feels deeply sorry for the lucky man that will marry me one day. Throughout the plaintiff’s arguments, there was a lot of talk about how safe ketamine is, how it has no withdrawal symptoms, how these treatments never really put Maya in any danger, and how Maya was, as one of the plaintiff’s witnesses testified, a quote, freight train headed to college before Johns Hopkins permanently injured her by taking her off of the ketamine, which she has remained off ever since.

The plaintiff has also framed this ketamine coma similarly. It didn’t [01:03:00] really have a 50 percent chance of death. That was just the warning that Dr. Cantu had to give the parents. for some reason. But reading Beata’s accounts of these five days was chilling. To picture her typing these out as she sat at her daughter’s bedside, it just sticks with you.

These letters also fit in with the overall picture that Beata seemed to be painting of her daughter’s condition in her request to have her labeled as terminal. In her multiple mentions of hospice and, quote, wanting to go to heaven. And even in her ending note, take care of Maya, but don’t let her suffer.

No child deserves that. She was not depicting a freight train headed to college, but a freight train headed off a cliff. Whatever you think about her, there’s no holding Beata to account now. It’s everyone else who’s left behind who has to pay the price, and that goes far beyond Johns Hopkins and [01:04:00] the Kowalski family.

The verdict in this case could be days away at this point, so likely the next episode that you will hear will be about that verdict. We’re also going to talk in a coming episode much more about Maya Kowalski’s testimony, because however this verdict plays out, this has really defined her young life, and it will have reverberations for the rest of it.

That’s next time on Nobody Should Believe Me.

Nobody Should Believe Me is a production of Larj Media. Our Senior Producer is Tina Nole and our Editor is Corine Kuehlthau

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